In Zac’s legacy we continue to raise money for cancer research through the Zachary Neurofibromatosis Research Fund so that hopefully, others may benefit.
ABOUT THE ZACHARY FUND– The nonprofit fund was established through the University of Minnesota Foundation in 2010 and is dedicated to supporting research to help find the causes and find cures for NF and cancer.
What is Neurofibromatosis?
Neurofibromatosis Type 1 (NF1) is a genetic congenital disorder that predisposes afflicted individuals to tumors of the central nervous system and the peripheral nerves. More than 80,000 people live with NF throughout the United States. Observations regarding tumor development in neurofibromatosis have led to important insights regarding brain tumors in the general population. The causes of NF1 remain largely unknown, making this research effort even more important. Neurofibromatosis can cause: brain tumors, deafness, learning disabilities, facial disfigurement, cancer, and optic gliomas.
Zachary was diagnosed with NF1 when he was 19 months old. He underwent years of treatments including chemotherapy, radiation, and surgery. Unfortunately his tumors recurred and became malignant. He lost his battle November 20, 2013 but right to the end he never wavered in his faith or positive spirit.